Tuesday, March 31, 2009
I will first confess that I was hoping they would say "he's fine" and "we don't really need to work with you guys". In fact I think I had my heart set on that.
They two women who came out (from 4 Oaks for those of you who live around here) were very nice and easy to talk to. They watched Baby J take a bottle, and then spit up 1/4c. of it (we have this problem quite a bit). They gave me some suggestions to help with that problem too, although not really their 'area' of expertise. *for the record he spit up maybe a tablespoon twice a week before he started PediaSure
After his food had had a chance to settle, they did some activities with him that mostly he thought, and looked like play. They made lots of notes, and they also asked tons of questions.
Baby J has almost no upper body strength or diaphragm muscles needed to crawl, and is significantly behind in his speech area (speech therapist and physical therapist will come next week). The OT is here to work on his fine motor skills (holding a bottle, reaching for a toy, etc.) but also works with large motor skills (sitting up, being able to lay on your belly and push up) that help with the finer skills. He is at least at the 4-6 month area in all motor areas, but they are not sure about speech, the therapist will give us a better idea about that next week.
Here's our homework:
1. No standing. Baby J loves to be held on his legs and 'stand' with us holding him. This is developing some muscles, but not the ones he needs. Right now he is going in the direction of walking/standing before crawling. Babies NEED to crawl to help with reading skills, tracking skills, and overall muscle development.
-this also includes exersaucers...if he is in one he has to have pillows under him to make him "sit" instead of stand. When we hold him he needs at least one of his legs at a 90deg angle at all times.
2. Exercising his arm/upperbody/shoulder muscles. We have a few positions to put him in, and he will need this exercise for 81 (not sure the significance of 81) minutes a day...not consecutively, but all together.
3. Getting him to hold his own bottle without help...this will happen gradually. He already grasps it, but without support of the bottle itself or his arms, he can't lift it. It is too heavy for him.
They saw good things too like smiling at himself in a mirror and reaching/looking for a dropped object. He got pretty cranky towards the end of the session, but hey, he was working hard!
The bad news for me was that he does indeed need services. The GREAT news for me is that in this case I can actually DO something to help him!
*If you didn't get to read my last post of congratulations to my dad, scroll down :o)
We just want to say congratulations on your retirement today! You have worked very hard for a very long time, and you deserve a break. Only we KNOW you won't be taking a break. You never do! However, when you get the time we'd love to have you...
...read us stories in the big chair...
Monday, March 30, 2009
Friday, March 27, 2009
Thursday, March 26, 2009
Thoughtful Thursdays is new to me, but I was reading about it on Kaleigh's blog. I think you are supposed to tell about something you did nice for someone else. But I am going to break the rules a bit and tell you what someone else did for us. Ok, many many people have been more than kind to us lately, but here is one of them.
I got my cousin Melissa's permission to share with you all that she is the one who donated her milk supply to me and is continuing to pump daily. I know that Milk Sharing isn't acceptable in many circles, or is 'weird', or whatever you want to think. The point is, Baby J needs more milk than I can produce right now, and she has been so generous to donate hers. Along with the HUGE generosity of family to pay for our first shipment, we have been blessed. (From now on we will make a "milk chain" to get it from Michigan to Ohio without mailing it)
Here's another thing that just kills me. A few months ago our pediatrician told me I wasn't "allowed" to continue breastfeeding. We later (when desperatly trying to get more calories in him) tried multiple formulas and only one didn't make him ill...but he wouldn't drink it. (THANK YOU to Katie and her husband for letting us try theirs though...it is so expensive and to only use 3 scoops of it would have been a waste). PediaSure isn't technically a formula, it is a toddler supplement, but he will take it. However, he needs another source of milk along with it. The formulas we tried made Baby J so sick that if we had indeed continued our GI doctor thinks he would be worse off.
The long and short of it is this: Without donated breastmilk we'd be in a heap of trouble/still trying to figure out how to use a Milk Bank. THANK YOU MELISSA. You are my thoughtful Thursday.
Wednesday, March 25, 2009
But you know what? Baby J will die. All of us will, and we don't know when or how...but we will all die. We know why we will die. We will die because sin separates us from God, and because of sin in the world our bodies are not perfect, they deteriorate and we pass away or accidents happen etc. But sin is the reason we die. We can't control or change or know when we will die...but we know what happens to us after we die. God has made a way for us to spend eternity with him. Each of us has a choice. We either choose to accept His free gift of salvation, through Jesus, or we can choose to ignore Him and thus go to Hell.
I believe Hell is a very real place. It isn't where a cute little devil with a pointy red tail runs around with a pitchfork. You don't got meet 'your buddies' there and have a good ol' time because heaven would just be boring. The Bible says in Revelation 20:10, 15 "And the devil, who deceived them, was thrown into the lake of burning sulfur, where the beast and the false prophet had been thrown. They will be tormented day and night forever and ever. vs 15 If anyone's name was not found written in the book of life, he was thrown into the lake of fire."
Anyone who has not made a personal decision to follow Christ (Romans 3:23-all have sinned), will die and go to Hell, but anyone who believes in Jesus (Romans 6:23), can have eternal life (John 3:16). How can you do that? Romans 10:9-11 "That if you confess with your mouth, 'Jesus is Lord' and believe in your heart that God raised him from the dead , you will be saved. For it is with your heart that you believe and are justified and it is with your mouth that you confess and are saved."
I almost wrote "I'm sorry I got off topic and went on that tangent" but I deleted it. I'm not sorry. It is the truth, and I felt the Holy Spirit prompting me to put it in. Because it is true...no matter what doctors can do for Baby J, or Stellan, or you or me...we are all going to die. We of course must live healthy and be responsible (ex, taking my sick baby to the specialist) but in the end, God gives us the time here on earth, and we don't know when it ends...but we can know how it ends. And Hell is forever, but so is Heaven...an eternal life spent in God's presence. No fear, no pain, no crying. Have you made that choice? Please think long and hard about it if you are not sure, and PLEASE feel free to ask me questions if you have any. You can leave a comment, or contact me personally.
Today we went back to Dr. K for Baby J's checkup. My friend Mindy graciously watched Snug for me so I didn't have 100 distractions with me in the office, and Mother Hen went with me. She is a great entertainer for Baby J in waiting rooms, etc.
Baby J weighs 14 lbs, 14 oz...the same as the day we left the hospital almost a week ago so no growth since then. However, he was 13 lbs, 12 oz when we were at our initial appointment almost 2 weeks ago...so he's had over a pound of gain! PRAISE GOD he has grown at all! We hadn't seen any significant weight gain since November...in fact he was smaller than he was in November (14 lbs 13 oz). Right now he is an ounce over that. He is the exact size they expect to see in a 4 month old, both length and weight. He will be 9 months old on Friday. That is just heartbreaking to hear. In truth, all of this has been extremely hard. I hate it.
Back to the positive! They think he has grown almost 1/4 centimeter. It is really really hard to tell because it so depends on how they wiggle...but based on the fact we see him tippy toeing the exersaucer...they are racking it up as growth. That puts him in the 4.5th percentile for height on a 8 month old. He still counts as 8 months until Friday...at which point he goes dropping back off the scale, but we're looking at the positive, remember? Still not close to being on the growth scale for weight.
SO, because he hasn't lost any weight he gets to start solids again! YEAH! During our visit we had our first appointment with the nutritionist. I was just praising God we were seeing her on how to introduce more foods rather than how to deal with Celiac disease. That in itself is a HUGE miracle. He will get 2Tbs of rice cereal made with PediaSure twice a day. I get to make baby food again! HURRAY! The nutritionist and the doctor are totally fine with Baby J getting donated milk. They still agree he needs breasmilk for all the benefits...but is at a 75/25 ratio (75 being PediaSure). Another praise, my milk supply seems to be going up about 1/8 oz a day. Not much, but I will SO TAKE IT :o)
THANK YOU FOR PRAYING. We are not out of the dark yet...our next appointment is in 3 weeks. The doctor is going out of town for that period, but says as long as he continues to
Now if you will excuse me, I am going to look at E-bay for a baby scale...because 3 weeks would be torturous!
Tuesday, March 24, 2009
That no matter what we find out tomorrow at the Dr...
This is one...
I got a call today from Children's hospital saying that they needed to talk to me about scheduling. Of course it was while I was doing laundry and couldn't hear the phone and of course they also called my cell phone which happened to be charging and not in my pocket where it normally is. *sigh*
Monday, March 23, 2009
I was going to just leave it at that and not blog at all...but then I remembered what a powerful tool blogging can be, and with the large "reading group" I have accumulated over the past few days...and felt that I needed to at least post and ask you all to pray too. Because what a mighty God we serve.
-The donated breastmilk came today, safe and sound, and Baby J took it easily.
-Some family members, who know who they are, paid for the shipment (VERY costly) for us. THANK YOU to everyone who was involved with this. It is literally keeping him alive and his organs healthy.
-We went and picked up the 576oz of free PediaSure tonight.
Sunday, March 22, 2009
Oh, and did I mention it came with all this track and little bridge? No? Neither did the "free" ad. But it was in the table (by the side of the road) nonetheless.
Saturday, March 21, 2009
Friday, March 20, 2009
A few months back I wrote a compare/contrast blog entry in answer to my cousin Melissa's blog entry. It was simply showing how different we are, but how we are still good friends. Some people say friends are the family you choose...I am very blessed to have family that are friends. In that entry I had commented that though she (Melissa) loves having lots of readers and "secretly wished she had as many readers as MckMama or CF Husband," I was super ok with a small following of close family and friends. I would feel very odd writing for an 'audience' because my blog was started to record the day to day activities of our family for my own amusement/stress relief, and for my side of the family who lives mostly in Michigan.
I also share random things about babywearing, cloth diapering, having a home daycare, trying to eat healthy, breastfeeding, and being on a budget/Financial Peace. If I had tons of people reading, I didn't think I would feel comfortable sharing those things.
However God used my love of writing my thoughts down and taking photos for more than just my own amusement. I do not know what I would have done in the past week without blogging. It was a way to inform many
Now that Baby J is doing well most of you will not continue to read the rambly thoughts on life I have, because I am neither witty nor interesting enough for a grand audience...but if you do choose to stay, welcome. This is just the Drays, today.
What? You wanted to know what we did today? Oh, of course you did. Well, Draycare
**THANK YOU to my mom who watched Snug, was a big encouragement, got lots of people praying, and even ran Draycare a few times. I'd love to post a picture of her right here for you to see, but seems how she doesn't like to have her picture taken/featured on our blog or flickr account, I will refrain. She does appear from time to time...but tonight it would probably be a bigger "thank you" not to put one up :O)
Thursday, March 19, 2009
Wow, so much in one week. This is day 7, and our final day in the hospital. We feel more settled about no dignosis after talking with Dr. M. According to him it is not at all odd to have a failure to thrive baby come into the hospital, have tons of tests run, and then find absolutly nothing...and them grow. 60% of the babies admitted for "failure to thrive" or low weight gain are never explained...and that was their explanation from him today. I am ok with that. Baby J is on a prescription for PediaSure that he will continue to use until discontinued by the GI doctors. He will also continue to take the medication he has been on here, at home. They are explaining his fussiness and gassiness to having so many bottles after he has been exclusively breastfed, except for our unsucessful formula trials. He is not used to all the air from a nipple.
I am going to say that it is a MIRACLE. They were just sure he had Celiac, and he doensn't. I would just like to think that God chose to heal his body. Thank you for your prayers. PRAISE GOD for this.
This post may not be very put together, and if I seem upset, I am just really tired. Baby J slept form 8:30pm-10:00pm....and then from about 5:00am-8:30am. The rest of the night he cried, no matter what we did. The nurses finally gave him some "gas drops" and he settled down a little after 5, only to be awoken by the cleaning lady who walked in and started swishing open trash bags right next to his bed before I could ask her not to. He woke up really cranky, and has been crying all morning. We're not crying, we're just cranky.
He does NOT HAVE Celiac disease. That is such an answer to prayer. We were so scared he did, and he was a "classic case" according to two of our GI doctors. His EGD test also pointed to Celiac from the way his intestines looked, but the biopsies were negative. What a relief that he does not have to live with that condition. We could have dealt with it, but SO are happy not to.
*the hospital is having a fire drill right now...the alarms are going off and blinking, and some automated lady is talking to us, but we don't have to go anywhere...what a good drill, huh?
So what is the answer? Well there isn't one. They don't have any answers actually, but because he is growing, he gets to go home. (I'm a little confused though, because he only gained while on the IV, and lost an ounce when he was off, which isn't bad or anything, but he had just had a 7oz bottle literally seconds before he got weighed. He hasn't been weighed today.)
Some speculations they have are;
He has a milk protein sensitivity...but PediaSure is milk based, so that doesn't add up.
His digestive system is immature
Even though he was full and happy he wasn't getting enough calories so he didn't grow. He was nursing 6 times a day, fully satisfied when he was done. He also ate close to a cup of food at each table meal consisting of quite a variety of fruits and veggies, oatmeal, rice cereal, tofu, and egg yolks. (he also was having several wet diapers and two BMs a day)
Some questions we have are;
Will he have to continue on his medication he's been given here? With is he isn't supposed to be vomiting or spitting up...but he is spitting up more than he ever has in his life.
Why is his face swollen? His little face is swollen today and no one seems to be concerned-maybe from all the crying he does?
Why is he crying and fussy so bad? I'm talking inconsolable screaming at times-as in last night, and again as I write this. We only have ever had this when he's been on a formula we tried when he was really young...and he is really gassy.
Bottom line we are so glad he doesn't have Celiac disease, we are super tired of being in the hospital, we are still confused.
Wednesday, March 18, 2009
Today we learned that the biopsies are not back yet, maybe tomorrow they say. Yes, yes, maybe tomorrow. Maybe Friday, maybe next week. Hey, why don't we move in? What? 1/2 our house seems to be in the room already? Oh, maybe we already have moved in! Sorry. It is just hard to hear "maybe tomorrow" so many times.
Tonight at 6 they had family time in the Family Resource Center. (Liz, does all this bring back memories? Thanks for the tips on how to 'live' here...we seriously appreciate it...I am so sorry you guys had to be here so long) Snug came and colored a little and played with all the toys. Baby J just enjoyed watching the other kids play. Some people from the Greek Orthodox church in Dayton were there as volunteers to play and do crafts with the kids. One of the ladies knew two guys #1 works with, as they attend church there also. The volunteers here are so great with the kids. It was nice to visit with Snug in a 'normal' setting, instead of trying to get him to behave in a hospital room and not have him play with the "baby jail" raising/lowering mechanisms, run over nurses, trip on an IV pole, or be too loud for other families around us.
Speaking of volunteers, we have several in and out every day. Some are here to make sure we have insurance and can pay for our stay, some are here with service dogs, some are here to lend out movies/video games, some are here to play with the kids, some are here in case you need counseling, and one very creepy man was here to see if we needed ______________. Can't even remember to tell you the truth. He walked in as I was changing Baby J and I think I stared at his beard for a full ten seconds before I even acknowledged he was speaking to me...I was just a little shocked. He had a beard, braided, that went down to the middle of his chest. Then he had straight 'Jesus hair' (not trying to be cheeky, just...well, that describes it best) that was WAY longer than mine. As he talked to us he kept looking all over the room...weird. We told him promptly that we needed nothing. I so didn't want to be weird, but he was not what I'd expect to find walking into my son's room in a children's hospital. Maybe because I was wearing my Harley t-shirt they thought we were major bikers and he'd connect with us...who knows. OH, I remember now, I looked back at my Twitters. He was there to make sure that all the staff and volunteers were up to our expectations and were doing everything we needed. Um, yes buddy, until you walked in looking like Mr. Biker Gang and scoped out our entire room, we were completely satisfied. Move along now please! (I am not exaggerating, he was looking EVERYWHERE...perhaps it was the fact that we have 1/2 the house here...)
Wordless Wednesday posts are supposed to be just a picture posted with no words...but seems how people are reading to know what we know about Baby J...I better put up some words!
Well, day number 6 here at the hospital. I wish I had some super-exciting news for everyone, but we don't know anything yet.
Our day starts around 7:00am with vitals and the first round of doctors. After diaper changes, a bottle, pumping, and a general clean-up of the room, I order breakfast and #1 goes and gets a breakfast.
Baby J sits in a swing in our doorway watching doctors make rounds and new nurses introduce themselves (that hasn't happened for us in 2 days...we know almost all of them now) to their patients. We eat breakfast behind him. He isn't allowed to eat any baby food and the sight of a spoon makes him a little cranky.
Next we take a short walk around just to get up and moving. He is supposed to get weighed then, but usually I have to remind them. Today I asked and it got done in the AM like it is supposed to. I guess I should have been asking earlier in the day on other days, but I don't like to be pushy. Today he did get weighed and he is 14 lbs 14 oz. Down an ounce, but that is ok.
We read stories, visit Lily (who has been here since March 4, yuck!), and play with toys until about 10:00. Then it is time for a nap.
He wakes up when his next set of vitals is due and then we go to the Family Center to watch the (non-contagious) children do crafts. Next up is lunch, nap, more nurses, maybe a doctor, and then brother comes to visit with Grandmommy! We have dinner, vitals, play with toys and then he goes to bed about 8:00pm...he usually isn't very good about going to bed here. He finally gets settled completely between 2 and 3 am. Then we start over!
We were supposed to find out the results of the biopsies today, but Dr. M said he didn't think they would be here until tomorrow and Dr. S said she would call the lab and tell them to hurry it up. Dr K (the man one) said he didn't know when the results would be back, but he is happy with Baby J's growth at this point and whatever the results of the biopsies we would be talking to someone about his diet when he returns home and then starting him on solids again sometime. Who knows when though. We will defiantly still be here on Thursday at this point.
If anyone would like to visit, we are "settled" enough now...there are not so many people in and out and we don't have any testing, and we (and by that I mean ME...#1 is always level) are more emotionally settled. Please just call my cell phone first or text so we can tell you if it is a good time. We've had lots of people offer to come, but we've not been too up to it. Trust us, we are up to it now. We may go a little bonkers in fact :o)
Did you know that people all over the world are praying for Baby J? Numerous people have called friends and family in other states to pray, churches across the United States are praying, my aunt who is a missionary has people everywhere praying, we have family in other states including Pennsylvania praying...plus all of my regular blog readers and lurkers who live all over. THANK YOU. People ask daily what they can do. Pray. And PRAISE GOD he is growing, even if it is at the hospital and his mommy gets mad she couldn't get him to grow at home. Bad attitude on my part, I know. Sorry.
One more thing, if you really want to help. I'd mentioned Project Linus in another post, we got another blanket from them yesterday in radiology. If you are crafty-sewey in anyway, consider finding out how you can make and donate a blanket or two. When you are so scared and worried about your baby, I can't tell you what it does to your heart to have someone wrap a homemade blanket around them and tell you someone made it to comfort you. I would love to know that this project of love will continue for other families because it really touched my heart. Thanks.
We participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request. Join a community of friends who care about you, and hope you will care about them.
Tuesday, March 17, 2009
Snug today...looking cool in his shades, and holding his bear who is wearing an IV wrap.
I would first like to say that although we have really liked all of our nurses, this morning we started off with a girl I went to Cedarville with, so that was fun, and now we have our nurse, Amy, back today, who we really like. How fun! She has even decided she will not be taking vitals, and neither will anyone else (the nurses aid etc.) while he is resting during the day. We are sitting right here, and I know how to look at his monitors (heart, blood pressure, etc) and they know I will let them know if I see anything suspicious. He is back off his IV. No weight check yet today.
I have been trying to do everything I can for him, along with #1 of course. We do his feedings, changings, wrap his IV port, record his ins and outs, and give him his medication. I need to feel like I am doing something here and the staff seems to be happy to share the load.
This morning at 8am we went to radiology for a little vacation. Hospital vacations are when you get to leave your room for more than a short stroll to see the fishtanks. You get to do exciting things like ride the service elevator that has pictures painted on the ceiling, sit in waiting rooms with snotty nosed little kids that you are trying to keep away from your kid, wish you had brought things from your room that you forgot, meet other hospital staff, and drag an IV pole around. I'm telling you, hospital vacations are just so relaxing. On this particular vacation we got to go with Katie, a little friend Baby J has here.
His two friends are Katie and Lily. They have both been here since we have. Katie probably gets to go home today. Lily has her family visit for a couple of hours in the afternoon, but she is pretty much alone the rest of the time. She is 7 months old and the nurses LOVE her and carry her all over. She hangs out with them most of the night too, as she screams when she is left alone. We are so fortunate that I stay home and can be here 24/7 and that #1 has sick time built up so that he has only had to work one night that we've been here. We don't ask too many questions about the other patients, and really they aren't supposed to tell either. We collect bits of info though. I just can't imagine having to leave him here by himself, that would break my heart. I do feel terrible about how much we have had to cancel Draycare lately. The parents have been very understanding.
Anyway, back to radiology. Baby J was given barium (unflavored for those who have been there) to drink, but he was so starving from being back on "NBM" he didn't seem to care. We went back 4 times for x-rays...once every half hour after they had done the initial one. Or maybe it was 4 times all together. I lose track. Anyway, they got what they needed and we are back in our room. The doctor down there showed us the x-rays which are all computerized now, and she said he passed with flying colors. He has no scarring. This can mean two things.
1. He has Celiac but it hasn't permanently damaged any bowel functions
2. He doesn't have Celiac at all.
#1 is playing Madden 2004, some football game on the Playstation 2 that is in our room. Baby J is sleeping with such an angelic expression, and I am going to order some lunch...and pump...again!
Oh! I have lots of pictures from out hospital vacation today...you know, our trip to radiology. I will try to post them later.
Monday, March 16, 2009
Um, yep. That's what he had today. They call it an EGD...but isn't Esophagogastroduodenoscopy fun to
I digress, serious rabbit trail.
When Baby J woke up this morning he was in a bad mood. He wasn't allowed to eat anything, and if you've ever seen that boy eat, well...his mood wasn't pretty. He is now feeling much, much better from his flu* (we'll discuss that later) and wants to eat lots. Since his procedure wasn't scheduled until 4:15 pm they decided he could have Pedialyte until 11:00am, so he chugged 18 oz in 2 hours. Amazing.
I have to admit I was very nervous. Kinda sick to my stomach. I really appreciate all the Bible verses that were sent my way. It was hardest sitting in the pre-op room waiting and waiting. The staff here is so nice. A nurse was kind enough to tell me almost all the moms cry in the pre-op room. The operating room (OR) nurse had someone else come in and take the bed he was going to be on into the OR so he could personally carry Baby J over. That made me happy to see him happily sucking a paci as he went on an adventure with a new friend.
They took pictures of Baby J's esophagus, stomach, and small intestine. We actually have some of the pictures for his scrapbook. They took several biopsies of suspicious areas, and the results of those won't be back until Wednesday. However, Dr. K said she is pretty sure he has Celiac Disease. I twittered that, but it didn't show up on my blog. She said she can't tell us that 100%, but that she has been doing this for over 2 decades and she knows what she sees, when she sees it. She is pretty sure that is what we are up against.
He has an Upper GI tomorrow morning at 8.
Snug was here playing hide-and-go-seek today and a friend of ours from church visited who happens to be in charge of the residents who are watching over Baby J. I know the big boss. Nice :o)
Well, I can't remember anything else to write...thanks for reading.
I forgot to comment more on the 'flu'. Dr. K said he may or may not have had an actual bug. Sometimes (again IF he does indeed have Celiac) it will present it with flu like symptoms as it progresses to the next stages. Good to know, good to know.
*For those of you who do not normally read my blog, Not Me! Monday was started by "MckMama" to relieve a bit of mommy stress and admit all the silly/crazy/dumb things that inevitably are a part of motherhood. If you want to read more of those, you can have around 400 entries to choose from for your reading pleasure if you go here. You know, because you are not reading my blog at work or while your kids are running around the house...
First things first. I will give the official medical updates.
Baby J was on NBM (nothing by mouth) from midnight last night until he started squealing his head off at everyone around 8:30 this morning. We then learned that his first test wouldn't be until 4:15 this afternoon so he was put on a clear liquid diet at which point he has had 18oz of Pedialyte (not the PediaSure he has been having) since 9:00 (writing at 10:45). Wow. It goes in one end and we can literally see him filling his diaper as he sucks them down. They come in 2 oz bottles...so we have been giving them to him as fast as we can switch the nipple. He is now back on NBM until after he recovers from the anesthesia.
The Upper GI has been moved to Tuesday morning...so at least here through Tuesday. We can go home when he is off the IV and gaining for 2 days. That doesn't seem possible to me seems how he hasn't had gain since November...and I don't plan on being here until June thankyouverymuch. He was 14.2 oz today, but his IV fluids are at 100% so he has no physical way NOT to gain as they up his IV. Now if he doesn't get the IV fluids changed he could level out again, and not gain. You can't reject IV fluids basically...they just go right into your veins.
Other than that, we know nothing. I'm working on getting a therapy dog up here to see him because he loves animals and once his Pedialyte wears off...or runs directly through him, he'll be pretty mad at us again.
If you can't tell, we are in pretty good spirits today. Baby J is fairly happy and we have the tests we have been waiting for within sight. If baby is happy, mommy is happy.
This week I did not...
I did not bring 5 children 4 and under to a specialist appointment at a large hospital.
I did not violate policy and feed them all
I have not broken down and cried on at least 100 occasions, and then within minutes be totally in control. Not Me
I do not get a bit annoyed when everyone thinks my son is "such a pretty girl"
I do not miss my other son so much it hurts sometimes and try to make him sit on my lap when he visits even though he wants to play hide-and-seek.
I do not hide in the shower and behind the privacy curtains making that 2 1/2 year old laugh his head off.
I do not secretly love that hospital food (which I get for free because I am nursing) is totally unhealthy and the stuff I try not to eat a ton of at home but "have" to eat here. not me
I have not come to terms that my days of nursing are very numbered even though I have fought so hard to keep it up until he is one. I am not relieved to have the doctor's blessing to pump and bottle feed because my son has not bit me until I am bleeding and bruised in the last few days. Not Me (I also have not gotten irrationally emotional about this very hard decision, as I watch my son slug down bottles of
Thanks for the prayers and the encouragement. 4:15 is a very important time today and we covet your prayers. Please pray that not only do they find nothing or nothing serious, but that when they remove the IV he starts gaining and never looks back...total healing. No matter what the outcome, God's will be done.
Sunday, March 15, 2009
Snug was happy to visit us at the hospital. He got to ride in a wagon, bring a balloon and eat some Cheerios.
Last night was a rough night. Baby J just could not go to sleep. By midnight he was doing a whiny moaning sound and just could not settle himself. I gave him 2 more oz of PediaSure thinking maybe he was hungry. After a few minutes he threw that, along with what the nurse assessed to be everything he had had in the past few hours, up. That was very discouraging. About 1 am I asked that they please contact the doctor and ask again about the IV or NG tube. I was done waiting for "something to stay down". He was very lethargic and doing this awful moaning sound, hadn't had a decent urine output all day and I don't care how much spit he had, he was not well. Period. They started IV fluids shortly afterwards.
About 3am Baby J woke up and wanted to nurse...rooting and grunting galore. He nursed like he hasn't in a few days and was drifting to sleep when he was done. He slept until 8am. In fact he slept through vitals checks, that I barely remember either, I was pretty tired. We actually slept through Dr. M coming to tell us about tomorrow's procedures, but the intern did a good job explaining it later. They were worried that if they started an IV he wouldn't want to eat, but it has done the opposite...he is more alert and happy and wanting to eat. They started him on a medication this morning to settle his tummy so hopefully he won't upchuck anything else today.
A very sick Baby J last night right after they started his IV.
1. An esophagogastroduodenoscopy