Sunday, January 29, 2012
"Eight Weeks", Alternately Titled, "Crying"
The older Sweet Pea gets the harder she has been. I've mentioned before that she is "fussy". That is just being polite. She has been demanding, angry, and cries ALL THE TIME. It has been especially hard the last two weeks.
LMM was very similar as a baby, and I decided to try something. When we found out that he couldn't have wheat/gluten and discovered how much better he felt when he didn't have it...we wondered if that was why he was such a difficult baby. Maybe he just didn't feel well. So as of this past Thursday, I am gluten-free. Although gluten in my milk shouldn't affect her growth till she starts solids (then if she did have a gluten allergy she'd drop right off the charts like LMM did) it could make her really uncomfortable. If she indeed cannot have wheat the likelihood that LMM (and she) have Celiac disease goes WAY up.
*Side note, you can see her diaper in this picture...she is almost totally cloth diapered now and you can see a post about it that I wrote for The Cloth Diaper Whisperer blog here. There were quite a few grammatical errors I realized later...sorry.
I noticed an improvement in her Friday night and all day Saturday. Saturday night she was fussy, but most babies are in the evening. There was such a difference in her Snug even thanked God when praying for dinner that "Molly stopped crying". It was getting hard for everyone in the house.
I don't know for sure that wheat is the culprit. We'll see what the next few days are like.
But we hope not to see a whole lot more of this.
Thursday, April 29, 2010
Four Five Updates
















Wednesday, March 31, 2010
One Year Anniversary
http://thedraystoday.blogspot.com/2009/03/baby-js-therapy-session-1.html

Getting a picture of him is very hard...in the high chair seems to be the easiest time...don't mind the messy face!
This morning we also had therapy. We. This is not all him, this is about all of us. Today is very different from our first day. Instead of OT, PT and speech, he is just got speech (his sign specialist was sick)with a speech therapist. He has discontinued OT and PT. But it is also different because my attitude is different. No matter how long it takes, we will keep working with him and keep trying to help him become the best he can be. And he was a pistol. Working with his personality (strong willed) and his SPD* and then figuring out the speech/communication end is very tiring.
Yesterday we also went back to start Celiac testing...again. Yeah, seems like March is the month for that sort of thing and our family. Must be St. Patrick's Day. I say that because Celiac runs in families who have Irish heritage more than any other. So some blood was taken to determine if Little Monkey has the Celiac gene. I can't believe that test wasn't done last year. Seems pretty easy to me, but I'm not the dr. If he has the gene, then we do blood tests and then probably another EGD (surgery). If he doesn't have the gene, I don't know what that means. I guess I don't ask enough questions.
I just know that for either the blood tests or EGD he has to go back to a "normal" diet. I told the nurse on the phone I am not doing that. Not right now. We have enough on our plate without dealing with diarrhea and a grumpy uncomfortable boy. If it isn't Celiac, we are 99.9% sure he is wheat-gluten intolerant. But if he is a Celiac, we really do need to have the diagnosis. But we are way more optimistic than last year!

You've come a long way baby!
*Sensory Processing Disorder
Monday, March 8, 2010
Tentatively
We have taken Little Monkey Man off of: Wheat, barley, malt (yeah, you KNEW he was a big drinker, but we are trying to curb the habit), rye, modified food starch, hydrolyzed vegetable proteins, hydrolyzed plant protein, oats, textured vegetable protein, semolina, durum, spelt, kamut, einkorn, faro, and triticale. Don't ask me what some of those are, I haven't a clue. I just read labels for them.
We also took him off of soy, rice, potato, corn, and bananas and will re-introduce them slowly. We knew as of last Thursday that things were looking up...but didn't want to get too excited. We are still very tentative but hopeful. There was a time where we really thought that dairy was to blame, so that is why we continue to be tentative.
He does not have an official diagnosis of Celiac disease, although we really do suspect that is what is going on. He may be gluten-intolerant instead. The diet is the same so it really doesn't matter. It can take up to 9 years to get an official Celiac diagnosis...and it really doesn't change anything. There is a chance if it is gluten-intolerance that he could outgrow it.
We are just thankful that he is feeling better (ok, other than the tremendous cold he has with a fever of 103) and things are looking up. Thank you so much for praying for us, we'll continue to ask God's guidance in this situation.


Tuesday, March 2, 2010
Just Another Tuesday? NEVER!
Awhile back I had a post called "Just Another Tuesday? Never!" and whenever something 'interesting' happens on a Tuesday, that is what I call those posts. Because I feel bad for Tuesdays.
This week in preschool, Draycare style, we are doing the letters "v" and "w". To go along with the letter "v" I decided we should go visit a veterinarian. We happen to be living next door to a vet, in fact renting from a vet. I called them up to make arrangements and the secretary informed me that school children under 18 were not allowed to have field trips there due to the fact that they could get hurt. School children under 18??? How many are over 18 out there? I know there are some, but really...?
Ok, so I'm sure I could have called a few more vets, but I happen to know the vet in charge of our county animal control. I serve on a steering committee for our county parks and rec that manages/does fund raisers for our dog park, and he is also on the committee. I called them next. We were assured that we could visit, but they were not sure what all they had to offer. Being that we are 3 & 4 years old, I told her we were not expecting too much :o)
I also talked to Doc B. last Thursday about it and he seemed excited to have us come. He mentioned that the kids could pet some animals and listen to their heartbeats through a stethoscope...that sounded just our speed.
The kids were very excited to visit the vet, and we even had to make a quick stop at ALDI (more on that later) and we picked up a box of doggie biscuits. A little "thanks for having us". We pulled into the lot and we had our usual "be polite, be quiet, don't touch unless told it is ok" speech. Everyone was ready to go inside and see what a vet does. Oh my were they going to find out.
So we get in and a nice lady takes us back to pet a friendly kitty. We talk a bit about how these kittys don't all have homes and people will come adopt them. We talk about the litter boxes, water dishes, etc. Then in comes Doc B. He is excited.
We are here just in time he says, he has just put a dog to sleep. I about wet myself. The kids just stared at him. I should have taken a camera, but I forgot...and we really need to keep this blog G so pictures today...not to be posted if I had taken them. He then told the kids the dog was just sleeping, because he was going to have surgery *WHEW*! I was relieved beyond what you can imagine.
He said we could watch the surgery so we all trooped back into a small room where a Pomeranian was laying very dead like on the exam table. The smell was...not great. It was very warm. Doc then proceeded to tell us he was going to neuter this dog. Yep folks, my home daycare/preschool class got to witness firsthand a dog being neutered. Doc explained that this kept the dog from being able to produce more puppies that wouldn't have homes. The kids thought it was a good idea for all puppies to have homes, so he proceeded.
Before I tell you exactly what went on, I have to say I nearly fainted for what I can remember is the first time in my life. I've stood up too fast and blacked out...but this was different. This was everything going swimmy...gray....back to color...sweating like crazy...and thinking I might vomit. I had to leave the operating room and go sit down. I am not squeamish, but I think the heat, smell, and procedure which you will now read about got to this pregnant woman!
The kids watched him scrub in, shave the dog, got an explanation of sterilization of instruments, saw him CUT THE DOG OPEN, remove the testicles, and sew him back up. Then they were introduced to vaccinations (which were given), paperwork, and saw him be microchipped. Then the dog started to wake up and was put into a recovery kennel. I kid you not, that is what the vet had planned for our preschool group. So what did you do this Tuesday?
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On a totally unrelated subject we had not one but 2 doctor's appointments for Little Monkey Man yesterday. He does not have food allergies, but the second doctor isn't convinced that Celiac can be totally ruled out. Evidently the average person who is diagnosed with it isn't diagnosed for 9 years after the symptoms start. It just takes that long to get a positive test. He wants us to put him on a gluten-free diet (including corn products/soy/and oats) for a few weeks and see what happens. If nothing, well then keep looking for something. If his diarrhea clears up, we have an answer. He could just even be wheat intolerant but until we clear it TOTALLY out for awhile we won't know.
So we stopped by a couple of grocery stores (after I did research online along with reading all the doctor's paperwork) to see what he could have. At home we had eggs, bacon, raisins, apples, and carrots. Somehow I thought he needed a bit more in his diet.

Monday, March 16, 2009
Esophagogastroduodenoscopy REVISED
Um, yep. That's what he had today. They call it an EGD...but isn't Esophagogastroduodenoscopy fun to
I digress, serious rabbit trail.
When Baby J woke up this morning he was in a bad mood. He wasn't allowed to eat anything, and if you've ever seen that boy eat, well...his mood wasn't pretty. He is now feeling much, much better from his flu* (we'll discuss that later) and wants to eat lots. Since his procedure wasn't scheduled until 4:15 pm they decided he could have Pedialyte until 11:00am, so he chugged 18 oz in 2 hours. Amazing.
I have to admit I was very nervous. Kinda sick to my stomach. I really appreciate all the Bible verses that were sent my way. It was hardest sitting in the pre-op room waiting and waiting. The staff here is so nice. A nurse was kind enough to tell me almost all the moms cry in the pre-op room. The operating room (OR) nurse had someone else come in and take the bed he was going to be on into the OR so he could personally carry Baby J over. That made me happy to see him happily sucking a paci as he went on an adventure with a new friend.
The
They took pictures of Baby J's esophagus, stomach, and small intestine. We actually have some of the pictures for his scrapbook. They took several biopsies of suspicious areas, and the results of those won't be back until Wednesday. However, Dr. K said she is pretty sure he has Celiac Disease. I twittered that, but it didn't show up on my blog. She said she can't tell us that 100%, but that she has been doing this for over 2 decades and she knows what she sees, when she sees it. She is pretty sure that is what we are up against.
He has an Upper GI tomorrow morning at 8.
Snug was here playing hide-and-go-seek today and a friend of ours from church visited who happens to be in charge of the residents who are watching over Baby J. I know the big boss. Nice :o)
Well, I can't remember anything else to write...thanks for reading.
***REVISION***
I forgot to comment more on the 'flu'. Dr. K said he may or may not have had an actual bug. Sometimes (again IF he does indeed have Celiac) it will present it with flu like symptoms as it progresses to the next stages. Good to know, good to know.