Wednesday, March 31, 2010

One Year Anniversary



Today marks the one year anniversary of Little Monkey Man (formally known as Baby J) getting free therapy from our county. The link below is from March 31, 2009. Take a minute to read it if you can. It really shows how far our little miracle has come.

http://thedraystoday.blogspot.com/2009/03/baby-js-therapy-session-1.html

Getting a picture of him is very hard...in the high chair seems to be the easiest time...don't mind the messy face!


This morning we also had therapy. We. This is not all him, this is about all of us. Today is very different from our first day. Instead of OT, PT and speech, he is just got speech (his sign specialist was sick)with a speech therapist. He has discontinued OT and PT. But it is also different because my attitude is different. No matter how long it takes, we will keep working with him and keep trying to help him become the best he can be. And he was a pistol. Working with his personality (strong willed) and his SPD* and then figuring out the speech/communication end is very tiring.

Yesterday we also went back to start Celiac testing...again. Yeah, seems like March is the month for that sort of thing and our family. Must be St. Patrick's Day. I say that because Celiac runs in families who have Irish heritage more than any other. So some blood was taken to determine if Little Monkey has the Celiac gene. I can't believe that test wasn't done last year. Seems pretty easy to me, but I'm not the dr. If he has the gene, then we do blood tests and then probably another EGD (surgery). If he doesn't have the gene, I don't know what that means. I guess I don't ask enough questions.

I just know that for either the blood tests or EGD he has to go back to a "normal" diet. I told the nurse on the phone I am not doing that. Not right now. We have enough on our plate without dealing with diarrhea and a grumpy uncomfortable boy. If it isn't Celiac, we are 99.9% sure he is wheat-gluten intolerant. But if he is a Celiac, we really do need to have the diagnosis. But we are way more optimistic than last year!



You've come a long way baby!

*Sensory Processing Disorder

3 comments:

Kim M said...

Yes, he has come a long way! Isn't it wonderful what God has already brought you through and to know that He will be there right beside all of you as you continue to learn/fight for what is best for him!

Smart to decide what is best for all of you - you will know when the time is right to take the next steps for testing if they are necessary. It's good to know he is feeling better!

Continuing to pray for all of you - excited to hear of baby's arrival (in God's timing of course!)

Aunt Kim

suzannah @ so much shouting/laughter said...

so glad at how well therapy is progressing. praying a good diagnosis comes through for his food senstivites--soon!

Cop Mama said...

Wow, he's done so well! Look at that beautiful smile. I will keep praying they find a solution for your monkey man!