At The Hospital Part 1

I am calling this "At The Hospital Part 1" because we know we will be here until at least Monday...and seeing that I, for the first time in many weeks, have nothing to do, I am sure I will be blogging!
I know that there are so many of you out there praying for us, thank you. I have even referred people who don't read to this site because it is the easiest way to update a large amount of people.
We don't know much...but I'll give you a run down of the last 24 hours

I would like to start off by telling you that if my friend Katie hadn't come with us to the specialist we would have been even more overwhelmed. She was certainly a blessing. She knew just the right questions to ask, and was very encouraging. I felt a little like a deer in the headlights, blindly following nurses and aides around and hearing lots of information. Thank God for friends. I will have to tell you sometime how I even know her...it is an interesting story.

After arriving at the specialist and settling the four oldest children down for McDonald's lunch (that they don't normally eat under my care and were thrilled to have) in an area that specifically said no food and drinks*, we got to go in to see Dr. K.
I was very happy with her, and she took Baby J/Me/our situation very seriously. Baby J is fighting a bug of some sort...not nearly what Snug had last week, but he is not interested in eating/nursing and she admitted him soon after seeing him. I was shocked about him being admitted...it just seems so...huge. I can't even describe how I feel or what we need, but so many of you have asked to help.

The staff here at Children's is great, and we have been well taken care of. There are a few things I've been confused about, but they have pretty much cleared up for me.

Baby J has an IV in his arm, but no bag. They want him to be getting as many calories as possible, and IV makes him not hungry/thirsty...just hydrated.
An NG Tube (I may be spelling that wrong) has been ordered since yesterday but still not put in. The GI docs want it, but the floor staff/docs don't. Not sure what all is going on there. I do know it is very uncomfortable/painful and that if he doesn't have to have it it is better, but on the other hand he's had 5 oz of fluid since midnight and I'm getting more than nervous. His output is also next to nothing.

Baby J is not nursing at this point. When I try he is either biting me or just kinda hanging out for comfort. I have begun pumping every hour, but I have never pumped well, and since he hasn't nursed well in hours going on days, my supply is not great...not that he's demanding much, we are kinda coaxing everything in, but I'd like to not lose my milk.

Part of the 5 oz was a little PediaSure they tried on him seems how he will not, will not take formula at this point. He hates it. He loved the PediaSure and they may give him more, although they do not routinely give it to children under 12months. PediaSure smells like vanilla milkshake...I might even drink it (no, I'm not going to, just saying...)

He has lost 3.5 oz since we arrived at the hospital. This has to stop. In the words of Dr. M today, "He can't afford to lose" (sooo....why do we not have the NG tube???)
He had blood taken yesterday, one of the tests is for Celiac Disease. We won't know the results of that test until at least end of next week, but Dr. M took one look at him this morning and said he was to have a scope test/possible biopsy Monday. She says he "looks like a classic case". Ug.

Anyway, this is the best way to keep up with what is going on. We have been very blessed with phone calls and texts, but it is hard to keep everyone updated all the time. Hope this helps. To God be the glory...he loves Baby J more than I ever will be able to or imagine. Thanks.

*The staff never said anything, and were very complimentary on the kids' behavior...I really think they didn't mind as long as we didn't leave a mess.